Improving care and outcomes for people with Spina Bifida in Wisconsin
Official title: Research Approaches to Improving the Care and Outcomes of People Living with Spina Bifida in Wisconsin: The NSBPR
Funded at Children's Hospital of Wisconsin · NIH-11141535 · Data updated 2026-11-12
This study is all about finding better ways to care for people with Spina Bifida in Wisconsin by working together with patients, families, and doctors to improve their health and experiences.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hospital of Wisconsin NIH-funded |
| Lab location | 1 site (Milwaukee, United States) |
| Project start | September 1, 2019 |
| Project end | August 31, 2025 |
| Funding year | 2019 |
| Award (this year) | $79,939 |
| NIH project number | 6U01DD001240-05M001 |
| Project ID | NIH-11141535 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals living with Spina Bifida in Wisconsin.
✕Less likely to help
Patients with conditions unrelated to Spina Bifida may not receive any benefit from this research.
What this research studies
This research focuses on enhancing the quality of care and health outcomes for individuals living with Spina Bifida in Wisconsin. It aims to identify effective strategies and interventions that can be implemented in clinical settings to better support these patients. The approach involves collaboration with healthcare providers, patients, and families to gather insights and develop tailored care plans. By analyzing existing care practices and outcomes, the research seeks to create a framework that can be used to improve overall patient experiences and health results.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for individuals with Spina Bifida.
How similar studies have gone: While there may be existing research on Spina Bifida care, this specific approach to improving outcomes in Wisconsin is relatively novel.
Where this research is happening
-
Children's Hospital of Wisconsin
Milwaukee, United States Active
Researchers
- Principal investigator: Sherburne, Eileen — Children's Hospital of Wisconsin
- Study coordinator: Sherburne, Eileen
Related research
Other NIH-funded projects on the same topics.
-
Improving care and outcomes for people living with spina bifida in Wisconsin
A patient-friendly project aims to improve everyday care and health outcomes for people with spina bifida in Wisconsin.
-
The National Spina Bifida Patient Registry at University of Pittsburgh
A national registry project at the University of Pittsburgh aims to collect and organize information about people with spina bifida to improve care.
-
Improving Care and Outcomes for People Living with Spina Bifida
A patient-friendly project aims to improve how people with spina bifida are cared for and how well they do over time.
-
Scoliosis and neurosurgical factors in myelomeningocele: a clinic registry study
This project uses registry data from Penn State’s Spina Bifida Clinic to understand how brain and spine-related issues influence when and why scoliosis surgery is needed in people with myelomeningocele.
-
UMPIRE: Better Urologic Care for Babies with Spina Bifida
This grant tests how to best protect kidney function in newborns with spina bifida by comparing and refining urologic care practices across multiple hospitals.
-
Spina Bifida Collaborative Care Network to Improve Outcomes
A national program is expanding coordinated care networks and a patient registry to help people with Spina Bifida get better, more consistent care.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.