Improving care and outcomes for people with Spina Bifida

Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida - 2019

NIH-funded research University of Utah · NIH-11141530

This study is all about finding better ways to care for people with Spina Bifida by working with patients, families, and doctors to create personalized care plans that improve health and well-being.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionUniversity of Utah NIH-funded
Lab location1 site (Salt Lake City, United States)
Project IDNIH-11141530 on NIH RePORTER

What this research studies

This research focuses on enhancing the quality of care and health outcomes for individuals living with Spina Bifida. It aims to identify effective strategies and interventions that can be implemented in clinical settings to better support patients. The approach may involve collaboration with healthcare providers, patients, and families to gather insights and develop tailored care plans. By analyzing existing practices and outcomes, the research seeks to establish best practices for managing this condition.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals diagnosed with Spina Bifida of all ages.

Not a fit: Patients with conditions unrelated to Spina Bifida may not receive any benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for individuals with Spina Bifida.

How similar studies have performed: While there have been various initiatives aimed at improving care for chronic conditions, the specific approaches for Spina Bifida may be novel and underexplored.

Where this research is happening

Salt Lake City, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.