Improving care and outcomes for individuals with Spina Bifida
The Continued Development and Implementation of the Spina Bifida Collaborative Care Network
This study is all about improving the lives of people with Spina Bifida by bringing together doctors, patients, and families to share helpful resources and ideas for better care.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Spina Bifida Association NIH-funded |
| Lab location | 1 site (Arlington, UNITED STATES) |
| Project ID | NIH-11142947 on NIH RePORTER |
What this research studies
This research focuses on enhancing the quality of life for individuals affected by Spina Bifida by developing and implementing a collaborative care network. The Spina Bifida Association aims to connect healthcare professionals, patients, and their families to share resources and best practices. By analyzing clinical outcomes data, the project seeks to identify effective clinic practices that lead to better health outcomes. This collaborative approach fosters communication and support among various stakeholders involved in the care of individuals with Spina Bifida.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with Spina Bifida and their families seeking improved care and support.
Not a fit: Patients without a diagnosis of Spina Bifida or those not engaged in the healthcare system may not receive benefits from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve the health outcomes and quality of life for individuals living with Spina Bifida.
How similar studies have performed: Previous initiatives have shown success in improving care through collaborative networks, indicating a promising approach for this research.
Where this research is happening
Arlington, UNITED STATES
- Spina Bifida Association — Arlington, United States (Active)
Researchers
- Principal investigator: Thibadeau, Judy Karen — Spina Bifida Association
- Study coordinator: Thibadeau, Judy Karen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.