Improving care and outcomes for individuals with spina bifida
Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
This study is looking to improve the health and well-being of people with spina bifida by figuring out what early factors might lead to challenges in their development and comparing different types of prenatal surgeries to see which ones work best for long-term health.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Baylor College of Medicine NIH-funded |
| Lab location | 1 site (Houston, United States) |
| Project ID | NIH-11142944 on NIH RePORTER |
What this research studies
This research focuses on enhancing the care and quality of life for individuals living with spina bifida, a complex condition that often leads to various health challenges. The project aims to understand the early risk factors that contribute to neurodevelopmental deficits in these patients and to evaluate the long-term outcomes of different prenatal surgical approaches. By analyzing data from the National Spina Bifida Patient Registry and conducting comparative studies on surgical techniques, the research seeks to identify effective strategies for improving health outcomes and reducing disparities among affected populations.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with spina bifida, particularly those experiencing related health complications.
Not a fit: Patients without a diagnosis of spina bifida or those who do not exhibit any related health issues may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for individuals with spina bifida.
How similar studies have performed: Previous studies have shown promising results in improving outcomes for spina bifida patients through innovative surgical techniques, indicating that this research builds on established findings.
Where this research is happening
Houston, United States
- Baylor College of Medicine — Houston, United States (Active)
Researchers
- Principal investigator: Castillo, Heidi — Baylor College of Medicine
- Study coordinator: Castillo, Heidi
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.