Improving cancer data for children and young adults
Official title: SEER RESEARCH SUPPORT REGISTRIES PROGRAM LINKAGES AND DATA MANAGEMENT SUPPORT
Funded at Wisconsin Department of Health Services · NIH-11219118 · Data updated 2026-11-12
This study is working to make cancer data for kids even better by connecting information from different sources, so researchers can better understand childhood cancers and help improve treatments and outcomes for young patients.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Wisconsin Department of Health Services NIH-funded |
| Lab location | 1 site (Madison, United States) |
| Project start | September 15, 2024 |
| Project end | April 30, 2028 |
| Funding year | 2024 |
| Award (this year) | $49,168 |
| NIH project number | 261201800017I-0-759102400002-1 |
| Project ID | NIH-11219118 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children and young adults diagnosed with cancer or those involved in cancer registries.
✕Less likely to help
Patients with cancers not covered by the National Childhood Cancer Registry may not receive direct benefits from this research.
What this research studies
This project aims to enhance the value of cancer data collected by the SEER program, particularly focusing on childhood cancers. By linking and managing data from the National Childhood Cancer Registry, the research seeks to improve cancer surveillance and better understand trends in cancer incidence among children and young adults. This effort will support various research activities that can lead to improved outcomes for affected patients. The methodology involves data linkage and management to create a comprehensive resource for researchers.
Why it matters
Potential benefit: If successful, this research could lead to better understanding and treatment options for childhood cancers.
How similar studies have gone: Previous research using similar data linkage approaches has shown success in enhancing cancer surveillance and improving patient outcomes.
Where this research is happening
-
Wisconsin Department of Health Services
Madison, United States Active
Researchers
- Principal investigator: Werner, Mark Allan — Wisconsin Department of Health Services
- Study coordinator: Werner, Mark Allan
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.