Improving cancer care and long-term follow-up for teens and young adults
Official title: Clinical Care Gaps and Unmet Needs in Adolescent and Young Adult (AYA) Cancers
Funded at Kaiser Foundation Research Institute · NIH-11135523 · Data updated 2026-11-12
This program works to improve care, follow-up, and support for people diagnosed with cancer between ages 15 and 39.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Kaiser Foundation Research Institute NIH-funded |
| Lab location | 1 site (Oakland, UNITED STATES) |
| Project start | September 15, 2020 |
| Project end | June 30, 2027 |
| Funding year | 2025 |
| Award (this year) | $1,473,690 |
| NIH project number | 5P01CA233432-06 |
| Project ID | NIH-11135523 on NIH RePORTER |
Who could benefit from this research
✓Could help
People diagnosed with cancer between ages 15 and 39, especially those transitioning from pediatric to adult care or currently in survivorship, are the ideal participants.
✕Less likely to help
Patients younger than 15 or older than 39, or those whose care does not involve AYA-specific transitions, may not directly benefit from this program.
What this research studies
If I was diagnosed with cancer between ages 15 and 39, this program looks at how my care is managed as I move from pediatric to adult providers, how fertility and financial issues are handled, and how my long-term health is watched. The program includes three linked projects focused on care coordination, fertility preservation, and survivorship monitoring using patient records, surveys, and clinic partnerships. Researchers will identify gaps that leave AYAs without continuous or comprehensive care and try new ways to fill those gaps. My experiences, responses to surveys, and health data could help shape better care models and support services for other young survivors.
Why it matters
Potential benefit: Could lead to better coordinated care, clearer fertility counseling, and stronger long-term follow-up for adolescent and young adult cancer survivors.
How similar studies have gone: Smaller programs have shown improvements in AYA care coordination and fertility counseling, but a coordinated multi-project program addressing the whole AYA care continuum is relatively novel.
Where this research is happening
-
Kaiser Foundation Research Institute
Oakland, United States Active
Researchers
- Principal investigator: Kushi, Lawrence H — Kaiser Foundation Research Institute
- Study coordinator: Kushi, Lawrence H
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.