Improving advance care planning for people with Alzheimer's and related dementias
Implementation Strategies to Promote Advance Care Planning among Persons Living with ADRD and those with Mild Cognitive Impairment in Outpatient Primary Care Practices
This study is all about helping people with Alzheimer's, related dementias, or mild cognitive impairment share their healthcare wishes early on, using an easy online tool that encourages them to talk about their care goals in a friendly way.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Wake Forest University Health Sciences NIH-funded |
| Lab location | 1 site (Winston-Salem, United States) |
| Project ID | NIH-11012793 on NIH RePORTER |
What this research studies
This research focuses on enhancing advance care planning (ACP) for individuals living with Alzheimer's disease and related dementias (AD/ADRD) and mild cognitive impairment (MCI). It aims to implement a user-friendly online tool that helps patients express their healthcare preferences early in their disease progression. By utilizing patient portals and motivational messaging, the study seeks to engage patients in meaningful discussions about their care goals outside of traditional clinical settings. The goal is to ensure that medical interventions align with patients' values and improve their quality of care.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with Alzheimer's disease, related dementias, or mild cognitive impairment who are still capable of making healthcare decisions.
Not a fit: Patients with advanced stages of dementia who are no longer able to participate in decision-making may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better alignment of medical care with patients' wishes, improving their quality of life during serious illness.
How similar studies have performed: Previous studies have shown success in using portal-based tools for advance care planning, but this specific approach has been less explored in the AD/ADRD and MCI populations.
Where this research is happening
Winston-Salem, United States
- Wake Forest University Health Sciences — Winston-Salem, United States (Active)
Researchers
- Principal investigator: Gabbard, Jennifer Lynn — Wake Forest University Health Sciences
- Study coordinator: Gabbard, Jennifer Lynn
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.