Improving access to genetic services for childhood cancer survivors
Improving Delivery of Genetic Services to High Risk Childhood Cancer Survivors: A Randomized Study of Remote Genetic Services Versus Usual Care
This study is looking at how to make genetic counseling easier for childhood cancer survivors who might be at risk for getting cancer again, by comparing in-person visits to online services, so they can get the support they need for their health.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Chicago NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project ID | NIH-10877066 on NIH RePORTER |
What this research studies
This research investigates how to enhance the delivery of genetic services to childhood cancer survivors who are at high risk for developing subsequent cancers. It compares traditional in-person genetic counseling with remote genetic services to determine which method is more effective in identifying genetic carriers among these survivors. The study aims to address the significant barriers that prevent many survivors from accessing necessary genetic testing and counseling, which is crucial for their long-term health management. By utilizing innovative delivery models, the research seeks to improve awareness and adherence to cancer surveillance guidelines among this vulnerable population.
Who could benefit from this research
Good fit: Ideal candidates for this research are childhood cancer survivors who may have a personal or family history of cancer and are at risk for genetic mutations.
Not a fit: Patients who are not childhood cancer survivors or those without a relevant family history of cancer may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly increase the identification of genetic risks in childhood cancer survivors, leading to better surveillance and preventive care.
How similar studies have performed: Previous studies have shown success with remote genetic services in adult populations, suggesting potential for similar benefits in childhood cancer survivors.
Where this research is happening
Chicago, United States
- University of Chicago — Chicago, United States (Active)
Researchers
- Principal investigator: Henderson, Tara Olive — University of Chicago
- Study coordinator: Henderson, Tara Olive
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.