Improving access to genetic medicine for diverse populations at Northwestern Medicine
Official title: Transforming health at the intersection of implementation science, learning health systems, and genomics at Northwestern Medicine
Funded at Northwestern University at Chicago · NIH-10976263 · Data updated 2026-11-12
This study is all about making sure everyone can benefit from genetic medicine, especially for heart and cancer health, by using real-life data to improve how healthcare is delivered to different communities.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Northwestern University at Chicago NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project start | September 23, 2024 |
| Project end | July 31, 2029 |
| Funding year | 2024 |
| Award (this year) | $666,062 |
| NIH project number | 1U01HG013745-01 |
| Project ID | NIH-10976263 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals from diverse racial and ethnic backgrounds who may benefit from genetic medicine, particularly those with cardiovascular or cancer-related conditions.
✕Less likely to help
Patients who do not have access to Northwestern Medicine or those who do not have conditions related to cardiovascular or cancer genetics may not benefit from this research.
What this research studies
This research focuses on enhancing equitable access to genetic medicine by leveraging learning health systems and implementation science. The team at Northwestern Medicine will design and implement strategies to improve healthcare delivery and outcomes for diverse populations, particularly in the areas of cardiovascular and cancer genetics. By integrating clinical, genetic, and patient-reported data, the project aims to create a genetics-enabled learning health system that continuously refines its approaches based on real-world data and community needs.
Why it matters
Potential benefit: If successful, this research could lead to improved access to genetic testing and personalized treatment options for patients from diverse backgrounds.
How similar studies have gone: Previous research has shown success in using learning health systems to improve healthcare delivery, making this approach promising yet innovative in the context of genetic medicine.
Where this research is happening
-
Northwestern University at Chicago
Chicago, United States Active
Researchers
- Principal investigator: Franklin, Patricia D — Northwestern University at Chicago
- Study coordinator: Franklin, Patricia D
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.