Improving access to care and research for ALS patients
Official title: Access for All in ALS (ALL ALS) East Clinical Coordinating Center
Funded at Massachusetts General Hospital · NIH-11185474 · Data updated 2026-11-12
This study is bringing together ALS clinics across the U.S. to help people with ALS and those at risk learn more about the disease by collecting important health information and samples from over 2,000 ALS patients and 500 healthy individuals.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Massachusetts General Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project start | September 25, 2023 |
| Project end | September 24, 2025 |
| Funding year | 2024 |
| Award (this year) | $15,032,251 |
| NIH project number | 3OT2NS136938-01S1 |
| Project ID | NIH-11185474 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals diagnosed with ALS and those who are asymptomatic gene carriers at high risk for developing the disease.
✕Less likely to help
Patients with other neurological conditions unrelated to ALS may not benefit from this research.
What this research studies
This research aims to create a comprehensive network of ALS clinical centers across the U.S. to enhance access to care and research for individuals with Amyotrophic Lateral Sclerosis (ALS). It will involve a large-scale observational study with over 2,000 ALS patients and 500 healthy individuals at risk of developing ALS due to genetic factors. The study will focus on collecting clinical data and biological samples to better understand the disease and its progression. By collaborating with multiple ALS centers, the project seeks to ensure diverse representation and robust data collection.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for ALS patients.
How similar studies have gone: Previous research has shown success in similar multi-center collaborations in ALS, indicating a strong potential for impactful findings.
Where this research is happening
-
Massachusetts General Hospital
Boston, United States Active
Researchers
- Principal investigator: Berry, James Dale — Massachusetts General Hospital
- Study coordinator: Berry, James Dale
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.