Identifying families at genetic risk for autism and providing support.
Core D: Dissemination and Outreach Core
This study is helping families with kids who might be at risk for autism get important genetic information early on, so they can access support and resources before any signs of developmental delays show up, especially in underrepresented communities.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-10916377 on NIH RePORTER |
What this research studies
This research focuses on identifying families with children who are at genetic risk for autism, allowing parents to receive genetic screening results before any clinical signs of developmental delays appear. The project aims to provide early intervention opportunities and support for these families, particularly in minoritized communities. It includes disseminating research findings through seminars and town halls, as well as offering navigation sessions to help families access resources and support. The initiative emphasizes communication and engagement with the autistic community to ensure that the needs of affected families are met.
Who could benefit from this research
Good fit: Ideal candidates for this research are families with children aged 0-11 who have been identified as being at genetic risk for autism.
Not a fit: Patients who do not have children at genetic risk for autism may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to earlier interventions for children at risk for autism, improving outcomes for affected families.
How similar studies have performed: Similar research has shown promise in early identification and intervention for autism, indicating that this approach could be beneficial.
Where this research is happening
New York, United States
- Columbia University Health Sciences — New York, United States (Active)
Researchers
- Principal investigator: Veenstra-Vanderweele, Jeremy — Columbia University Health Sciences
- Study coordinator: Veenstra-Vanderweele, Jeremy
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.