Identifying developmental delays in infants and toddlers with sickle cell disease
Official title: Early Identification Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease
Funded at Washington University · NIH-10747431 · Data updated 2026-11-12
This study is looking at how we can spot and help young children with sickle cell disease who might be developing a bit slower, so we can support their growth and learning right from the start, while also providing helpful information to their caregivers.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Washington University NIH-funded |
| Lab location | 1 site (Saint Louis, United States) |
| Project start | July 1, 2023 |
| Project end | June 30, 2028 |
| Funding year | 2024 |
| Award (this year) | $129,542 |
| NIH project number | 5K23HL161328-02 |
| Project ID | NIH-10747431 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are infants and toddlers diagnosed with sickle cell disease, particularly those under the age of 3.
✕Less likely to help
Patients who are older than 3 years or do not have a diagnosis of sickle cell disease may not benefit from this research.
What this research studies
This research focuses on early identification and intervention for developmental delays in infants and toddlers diagnosed with sickle cell disease (SCD). It aims to evaluate children at 9, 18, and 30 months of age to assess their developmental progress and identify any deficits. The study will also involve caregiver education programs to enhance developmental outcomes. By addressing these issues early, the research seeks to improve the overall developmental trajectory of affected children.
Why it matters
Potential benefit: If successful, this research could lead to earlier interventions that significantly improve developmental outcomes for infants and toddlers with sickle cell disease.
How similar studies have gone: Previous studies have shown that early intervention can improve developmental outcomes in similar populations, indicating a promising approach.
Where this research is happening
-
Washington University
Saint Louis, United States Active
Researchers
- Principal investigator: Hoyt, Catherine Rose — Washington University
- Study coordinator: Hoyt, Catherine Rose
Related research
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.