How Wabanaki people describe pain during recovery
Understanding Pain Expression in Wabanaki People during Recovery: Enhancing Wabanaki Research, Data Self-Determination, and Capacity Development
['FUNDING_OTHER'] · WABANAKI HEALTH AND WELLNESS · NIH-11375339
This project helps Wabanaki communities build secure tools and training so people in recovery can clearly share how they experience pain.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | WABANAKI HEALTH AND WELLNESS (nih funded) |
| Locations | 1 site (BANGOR, UNITED STATES) |
| Trial ID | NIH-11375339 on ClinicalTrials.gov |
What this research studies
As a Wabanaki person in recovery, this project will help my community set up a secure, HIPAA-compliant REDCap system at Wabanaki Public Health and Wellness so our health stories can be captured safely. Local WPHW staff will be trained to become REDCap experts and to deliver a research training curriculum adapted for community members. That will let us design and run community-led projects about how Wabanaki people express and cope with pain during recovery while keeping control of our data. The effort is meant to boost community research literacy and create the infrastructure for future studies that involve people like me.
Who could benefit from this research
Good fit: Ideal participants are Wabanaki adults in recovery from opioid or stimulant use or those living with acute or chronic pain who want to take part in community-led research.
Not a fit: People who are not part of Wabanaki communities or who have no interest in local research capacity building are unlikely to see direct benefits from this project.
Why it matters
Potential benefit: If successful, this work could give Wabanaki people more control over research and lead to pain care and support that better reflect our recovery experiences.
How similar studies have performed: Community-led capacity building and local use of REDCap have helped other communities run patient-centered research, but applying this specifically to Wabanaki pain expression is relatively new.
Where this research is happening
BANGOR, UNITED STATES
- WABANAKI HEALTH AND WELLNESS — BANGOR, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: NEPTUNE-BEAR, SELENA — WABANAKI HEALTH AND WELLNESS
- Study coordinator: NEPTUNE-BEAR, SELENA
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.