How state laws and ableism affect kidney transplant access for people with intellectual or developmental disabilities
Impact of ableism and state laws designed to mitigate ableism on organ transplant equity for kidney transplant candidates with intellectual or developmental disabilities
['FUNDING_R01'] · OHIO STATE UNIVERSITY · NIH-11146386
This project looks at whether state anti-discrimination laws and other patient factors help people with intellectual or developmental disabilities get fair access to kidney transplants.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | OHIO STATE UNIVERSITY (nih funded) |
| Locations | 1 site (Columbus, UNITED STATES) |
| Trial ID | NIH-11146386 on ClinicalTrials.gov |
What this research studies
From your perspective, the researchers will compare people with intellectual or developmental disabilities (IDD) to those without IDD to see who gets listed for and receives kidney transplants and who stays on dialysis longer. They will use national Medicare claims and local electronic health record data to track transplant access and time on dialysis across different states. The team will examine whether state laws that ban disability-based discrimination are linked to smaller gaps in transplant access for people with IDD. They will also look at which patient characteristics combine with ableism to make it harder for some people to get a transplant and compare documented reasons why some candidates are excluded.
Who could benefit from this research
Good fit: People with intellectual or developmental disabilities who are being evaluated for, listed for, or receiving dialysis while awaiting a kidney transplant would be most directly relevant to this research.
Not a fit: People without kidney disease or those not seeking transplant evaluation are unlikely to get direct benefits from this project.
Why it matters
Potential benefit: If successful, this work could identify which laws and factors reduce discrimination so more people with IDD can receive timely kidney transplants.
How similar studies have performed: Previous research has documented transplant disparities and some policy effects, but applying state-law comparisons specifically to transplant equity for people with IDD is relatively new.
Where this research is happening
Columbus, UNITED STATES
- OHIO STATE UNIVERSITY — Columbus, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HAND, BRITTANY NICOLE — OHIO STATE UNIVERSITY
- Study coordinator: HAND, BRITTANY NICOLE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Child Development Disorders