How SCN8A gene changes cause severe childhood epilepsy

Functional Genetics of the Neuronal Sodium Channel Gene SCN8A

NIH-funded research University of Michigan at Ann Arbor · NIH-11261040

Working on gene-targeting treatments (AAV, ASO, CRISPR) to reduce seizures in children with SCN8A-related developmental epileptic encephalopathy.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Michigan at Ann Arbor NIH-funded
Lab location1 site (Ann Arbor, United States)
Project IDNIH-11261040 on NIH RePORTER

What this research studies

Researchers made a mouse that carries the same SCN8A mutation found in some children with developmental epileptic encephalopathy and showed that the mutant channel causes seizures and early death. They previously used an antisense oligonucleotide (ASO) injected into the brain to lower the faulty gene’s messages and delay seizures. Now they are developing more targeted, longer-lasting approaches: AAV-delivered shRNA to limit treatment to specific brain regions and allele-specific CRISPR to inactivate only the mutant copy. They are also studying how the mutation affects cerebellar Purkinje cells to better understand symptoms like ataxia.

Who could benefit from this research

Good fit: Children with confirmed SCN8A mutations that cause developmental epileptic encephalopathy (for example R1872W or N1768D) would be the eventual candidates for these approaches.

Not a fit: People without SCN8A mutations or whose epilepsy is caused by other genes are unlikely to benefit from these SCN8A-targeted approaches.

Why it matters

Potential benefit: If successful, this work could lead to targeted, longer-lasting therapies that reduce seizures and improve survival and quality of life for children with SCN8A-DEE.

How similar studies have performed: Prior preclinical work in this same mouse model showed that ASO treatment reduced seizures and extended lifespan, while allele-specific CRISPR and region-targeted AAV approaches are promising but less established for SCN8A in humans.

Where this research is happening

Ann Arbor, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.