How public long-term care benefits could help people with dementia and their families

Tradeoffs in the Design of Public Long-Term Care Benefits

NIH-funded research Harvard Medical School · NIH-11416714

This project looks at how different public long-term care benefit designs would affect people with dementia, their families, and who pays for care.

Quick facts

Grant typeP01 program project
Study typeNIH-funded research
Funding institutionHarvard Medical School NIH-funded
Lab location1 site (Boston, United States)
Project IDNIH-11416714 on NIH RePORTER

What this research studies

If you or a family member has dementia, this work examines who currently pays out-of-pocket for long-term care and who would gain financially from expanded public coverage. The team will analyze large national surveys and government administrative records to see how options like relaxed Medicaid rules or a new federal benefit would change service use and costs. They will describe the groups most likely to receive financial help and model whether expanded coverage would lead more people to use needed care.

Who could benefit from this research

Good fit: People with Alzheimer’s disease or related dementias, their family caregivers, and Medicare beneficiaries who need long-term care services are the populations most directly relevant to this project.

Not a fit: People without long-term care needs or those already fully covered by private long-term care insurance may not see direct benefits from the findings.

Why it matters

Potential benefit: If successful, this work could inform policy changes that reduce out-of-pocket costs and improve access to long-term care for people with dementia.

How similar studies have performed: Prior policy analyses have shown public LTC expansions can lower out-of-pocket spending but may increase service use, and this project builds on those findings with newer data and more detailed tradeoff modeling.

Where this research is happening

Boston, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer disease dementiaAlzheimer syndrome
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.