How MYBPC3 gene changes lead to thickened heart muscle (hypertrophic cardiomyopathy)

Missense Variants in Myosin Binding Protein C that Cause Hypertrophic Cardiomyopathy

NIH-funded research University of Pennsylvania · NIH-11193969

This project looks at how specific changes in the MYBPC3 gene disturb heart muscle proteins in people with hypertrophic cardiomyopathy to point toward better treatments.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Pennsylvania NIH-funded
Lab location1 site (Philadelphia, United States)
Project IDNIH-11193969 on NIH RePORTER

What this research studies

From my perspective as a patient, researchers are focusing on certain MYBPC3 missense changes that cluster in parts of the protein called C3 and C6. They will use a proximity-labeling technique (TurboID) to map which proteins sit near the normal versus mutant MyBP-C and compare the differences. The team will then study how those altered interactions change myosin shape, local protein production, and how damaged proteins are removed. The goal is to connect those molecular changes to how the heart becomes abnormally thick and rhythm problems develop so new therapies can be designed.

Who could benefit from this research

Good fit: People with hypertrophic cardiomyopathy who have a known MYBPC3 missense variant—especially variants in the C3 or C6 regions—would be most relevant to this work.

Not a fit: People whose HCM is caused by other genes or non-genetic causes, or those without a MYBPC3 variant, are less likely to directly benefit from these specific findings.

Why it matters

Potential benefit: If successful, this work could reveal targets for drugs or improve how we predict and manage disease in people with MYBPC3 variants.

How similar studies have performed: Prior genetic and protein studies have linked MYBPC3 to HCM, but applying TurboID proximity labeling to map altered protein interactions is a relatively new approach with promising but not yet proven clinical translation.

Where this research is happening

Philadelphia, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.