How muscles are damaged in myotonic dystrophy type 1

Mechanisms of Skeletal Muscle Pathogenesis in Myotonic Dystrophy Type 1

NIH-funded research Baylor College of Medicine · NIH-11164817

This project will uncover how abnormal RNA and protein changes cause muscle weakness and wasting in people with myotonic dystrophy type 1.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionBaylor College of Medicine NIH-funded
Lab location1 site (Houston, United States)
Project IDNIH-11164817 on NIH RePORTER

What this research studies

Researchers are studying DM1, a genetic condition where an expanded repeat in the DMPK gene makes toxic RNA that traps important muscle proteins and disrupts normal muscle development. The team combines experiments in lab-grown cells and mouse genetic models with studies of human blood and tissue samples to follow how these RNA and protein changes harm muscle. They are especially focused on why the CELF1 protein becomes too abundant in affected muscle and how that contributes to disease. Findings will map the step-by-step changes that lead to muscle wasting and point to molecular targets for future treatments.

Who could benefit from this research

Good fit: Adults with genetically confirmed myotonic dystrophy type 1 who are willing to provide blood or muscle samples or participate in related clinical sample collections would be the best fit.

Not a fit: People without DM1 or those seeking immediate clinical treatments are unlikely to gain direct benefits from this basic-mechanism research.

Why it matters

Potential benefit: If successful, this work could point to new ways to prevent or reverse muscle weakness in people with DM1 by targeting the molecular steps that cause damage.

How similar studies have performed: Previous studies have shown that fixing MBNL-related splicing problems can improve symptoms in models, but the specific causes of CELF1 upregulation in muscle remain a newer and less-tested area.

Where this research is happening

Houston, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.