How Medicaid affects care for adults who survived childhood cancer

Disparities in Quality Healthcare Among Childhood Cancer Survivors: Role of Medicaid

NIH-funded research Emory University · NIH-11251259

This project looks at how Medicaid shapes healthcare experiences for adults who had cancer as children.

Quick facts

Grant typeCareer grant
Study typeNIH-funded research
Funding institutionEmory University NIH-funded
Lab location1 site (Atlanta, United States)
Project IDNIH-11251259 on NIH RePORTER

What this research studies

If you join, researchers will contact adult survivors with Medicaid from the Childhood Cancer Survivor Study and ask some people to take part in interviews and surveys. First, 20 survivors will do in-depth interviews and 10 providers or financial navigators will be interviewed to learn about barriers and supports, and 8 survivors from those interviews will join a Delphi panel to prioritize issues. Next, a pilot survey will go to 144 survivors and a larger survey will be sent to about 2,536 survivors to measure patterns across the Medicaid population. The team will use these interviews and survey results to identify modifiable factors that affect the quality of long-term care for survivors.

Who could benefit from this research

Good fit: Ideal participants are adult survivors of childhood cancer who are currently covered by Medicaid and willing to complete interviews or surveys.

Not a fit: People who are not covered by Medicaid, are younger than 21, or cannot complete interviews or surveys may not directly benefit from this project.

Why it matters

Potential benefit: If successful, the work could point to changes that improve access to and quality of long-term follow-up care for childhood cancer survivors covered by Medicaid.

How similar studies have performed: Previous research has shown gaps in long-term care for childhood cancer survivors, but focused studies on survivors' experiences within Medicaid are limited.

Where this research is happening

Atlanta, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.