How Medicaid affects care for adults who survived childhood cancer
Official title: Disparities in Quality Healthcare Among Childhood Cancer Survivors: Role of Medicaid
Funded at Emory University · NIH-11251259 · Data updated 2026-11-12
This project looks at how Medicaid shapes healthcare experiences for adults who had cancer as children.
Quick facts
| Grant type | Career grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | July 21, 2023 |
| Project end | January 31, 2028 |
| Funding year | 2026 |
| Award (this year) | $129,559 |
| NIH project number | 5K01MD018637-04 |
| Project ID | NIH-11251259 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal participants are adult survivors of childhood cancer who are currently covered by Medicaid and willing to complete interviews or surveys.
✕Less likely to help
People who are not covered by Medicaid, are younger than 21, or cannot complete interviews or surveys may not directly benefit from this project.
What this research studies
If you join, researchers will contact adult survivors with Medicaid from the Childhood Cancer Survivor Study and ask some people to take part in interviews and surveys. First, 20 survivors will do in-depth interviews and 10 providers or financial navigators will be interviewed to learn about barriers and supports, and 8 survivors from those interviews will join a Delphi panel to prioritize issues. Next, a pilot survey will go to 144 survivors and a larger survey will be sent to about 2,536 survivors to measure patterns across the Medicaid population. The team will use these interviews and survey results to identify modifiable factors that affect the quality of long-term care for survivors.
Why it matters
Potential benefit: If successful, the work could point to changes that improve access to and quality of long-term follow-up care for childhood cancer survivors covered by Medicaid.
How similar studies have gone: Previous research has shown gaps in long-term care for childhood cancer survivors, but focused studies on survivors' experiences within Medicaid are limited.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Ji, Xu — Emory University
- Study coordinator: Ji, Xu
Related research
Other NIH-funded projects on the same topics.
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Strategies to Find and Reconnect Adolescent and Young Adult Cancer Survivors to Adult Follow-Up Care
A nationwide effort to locate and re-engage young people who survived childhood cancer so they can keep receiving important follow-up care.
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Using ECG and AI to find childhood cancer survivors at risk for late cardiomyopathy
This project uses routine ECG tracings plus artificial intelligence to spot childhood cancer survivors who may develop heart muscle disease years later.
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STRENGTH: Time-restricted eating to reduce cardiometabolic risk in childhood cancer survivors
A program tests whether time-restricted eating can lower heart and diabetes risks for adults who survived childhood cancer.
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Family-centered communication help for young adult survivors of childhood cancer
A K08 grant to develop and pilot a tailored family-centered communication program to help young adult survivors of childhood cancer manage their ongoing care.
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Digital self-management and peer mentoring to help childhood cancer survivors transition to adult care
A digital, mentor-supported program helps young survivors manage their health as they move from pediatric to adult follow-up care.
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Personalized heart risk prediction for childhood cancer survivors
This project helps predict and lower the chance of heart disease for people who survived cancer as children.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.