How Marfan syndrome affects the heart and aorta

Regulation of Cardiovascular Physiology in Marfan Syndrome

NIH-funded research University of Nebraska Medical Center · NIH-11362101

This project looks at how Marfan syndrome changes heart and aorta function in people with the condition to help prevent aneurysms and heart failure.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionUniversity of Nebraska Medical Center NIH-funded
Lab location1 site (Omaha, United States)
Project IDNIH-11362101 on NIH RePORTER

What this research studies

Researchers will study how mutations in the fibrillin-1 protein change the connective tissue around heart cells and within the aortic wall using lab models and patient-derived samples. They will examine signaling pathways such as TGFβ and the angiotensin AT1 receptor and test how blocking those signals (for example with drugs like losartan) changes disease processes. The team will focus on tissue-specific differences to explain why some people develop aortic aneurysms while others develop weakened heart muscle. Findings are intended to point toward better-timed or more targeted treatments for people with Marfan syndrome.

Who could benefit from this research

Good fit: Ideal candidates would be people diagnosed with Marfan syndrome, especially those with known FBN1 (fibrillin-1) mutations or early signs of aortic enlargement or cardiomyopathy.

Not a fit: People without Marfan syndrome or whose heart disease is caused by unrelated conditions are unlikely to receive direct benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could lead to better ways to prevent or slow aortic aneurysm and heart failure in people with Marfan syndrome.

How similar studies have performed: Similar approaches, such as using losartan to reduce TGFβ-related signaling, showed promise in animal models and some early human work but clinical results have been mixed and the precise tissue-specific effects remain unclear.

Where this research is happening

Omaha, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.