How hospitals share patient data and samples with companies
Hospitals Sharing Patient Data and Biospecimens with Commercial Entities: Evidence-Based Translation to Improved Practice
This project looks at how hospitals share patients' medical data and biospecimens with commercial partners and what patients find acceptable.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Michigan at Ann Arbor NIH-funded |
| Lab location | 1 site (Ann Arbor, United States) |
| Project ID | NIH-11092214 on NIH RePORTER |
What this research studies
You would be asked about real hospital policies and examples where medical records or biological samples were shared with companies. The research team will use surveys, interviews, and document review to understand patient concerns and identify possible compromises. They will pay special attention to consent options, privacy protections, and respect for patient choices. Results will be used to recommend clearer, more patient-centered hospital practices for sharing data and samples.
Who could benefit from this research
Good fit: Ideal participants are adult patients who have had medical records or biospecimens collected and are willing to share their experiences and opinions about data sharing.
Not a fit: Patients looking for a new treatment or direct clinical care should not expect personal medical benefits from participating in this project.
Why it matters
Potential benefit: Could lead to clearer hospital policies that protect patient choices while enabling responsible data sharing for medical research.
How similar studies have performed: Previous surveys and ethics research have shown patients often distrust industry data-sharing and have informed consent practices, though applying mixed methods directly to hospital-industry partnerships is a newer approach.
Where this research is happening
Ann Arbor, United States
- University of Michigan at Ann Arbor — Ann Arbor, United States (Active)
Researchers
- Principal investigator: Spector-Bagdady, Kayte Kelleher — University of Michigan at Ann Arbor
- Study coordinator: Spector-Bagdady, Kayte Kelleher
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.