How healthcare paperwork and hassles affect people with Alzheimer's and related dementias
Official title: Project 4 - The Health Impact of Administrative Burdens for People with ADRD
Funded at National Bureau of Economic Research · NIH-11195578 · Data updated 2026-11-12
This project looks at how billing, prior authorizations, forms, and other healthcare hassles affect the health and day-to-day care of people with Alzheimer's and related dementias.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Bureau of Economic Research NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project start | February 1, 1997 |
| Project end | August 31, 2029 |
| Funding year | 2025 |
| Award (this year) | $364,973 |
| NIH project number | 5P01AG005842-36 |
| Project ID | NIH-11195578 on NIH RePORTER |
Who could benefit from this research
✓Could help
People diagnosed with Alzheimer's disease or a related dementia and their family caregivers who have experience navigating healthcare services would be ideal candidates.
✕Less likely to help
People who do not have dementia or who do not interact with the U.S. healthcare system are unlikely to gain direct benefit from this project.
What this research studies
From your perspective, the project focuses on how everyday paperwork and administrative requirements make healthcare harder for people with Alzheimer's and related dementias and their family caregivers. Researchers will talk with patients, caregivers, and clinicians, run surveys and interviews, and review medical and billing records to see how administrative tasks affect access, timeliness, and quality of care. You or your caregiver might be asked to complete a survey or interview, share examples of paperwork problems, or give permission to review relevant records. The team will analyze these findings to identify common hurdles and recommend ways to simplify processes and improve care navigation.
Why it matters
Potential benefit: If successful, this work could lead to simpler processes, better access to services, and less stress for people with ADRD and their caregivers.
How similar studies have gone: Prior work shows that reducing administrative burdens can improve access and reduce stress for patients generally, but applying this focus specifically to Alzheimer's and related dementias is a newer area of research.
Where this research is happening
-
National Bureau of Economic Research
Cambridge, United States Active
Researchers
- Principal investigator: Layton, Timothy — National Bureau of Economic Research
- Study coordinator: Layton, Timothy
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.