How faulty heme transport can cause congenital hydrocephalus

Defective heme transport in the development of congenital hydrocephalus

NIH-funded research University of California, San Francisco · NIH-11126670

This project is finding out whether problems moving heme, an oxygen-carrying molecule, in developing brain cells lead to congenital hydrocephalus in infants.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of California, San Francisco NIH-funded
Lab location1 site (San Francisco, United States)
Project IDNIH-11126670 on NIH RePORTER

What this research studies

The team uses mouse models that carry the same gene changes seen in a genetic form of congenital hydrocephalus to study how heme movement affects the developing brain. They manipulate heme transporter genes (including FLVCR2 in blood vessel cells and FLVCR1a in neural progenitor cells) and examine brain blood vessels, oxygen levels, and neural stem cell behavior. The investigators combine genetics, cell biology, tissue analysis, and brain imaging to track how disrupted heme handling links abnormal angiogenesis and disrupted cell differentiation to enlarged brain ventricles. Results are intended to clarify disease mechanisms that could point to new treatment targets.

Who could benefit from this research

Good fit: People most directly affected would be infants and families with congenital hydrocephalus, especially those with known or suspected FLVCR2-related genetic forms.

Not a fit: Patients whose hydrocephalus is caused by non-genetic factors (for example post-hemorrhagic or obstructive causes) may not see direct benefits from these findings in the near term.

Why it matters

Potential benefit: If successful, this work could identify new ways to prevent or treat congenital hydrocephalus by targeting heme transport or related blood-vessel and oxygen problems in the developing brain.

How similar studies have performed: Related animal studies already link FLVCR2 and FLVCR1a defects to abnormal brain vessels, hypoxia, and hydrocephalus, but human treatments based on this mechanism remain untested.

Where this research is happening

San Francisco, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.