How dystroglycan problems disrupt brain synapses

Synaptic dysfunction in models of dystroglycanopathy

NIH-funded research Oregon Health & Science University · NIH-11307643

This project finds out how defects in dystroglycan lead to abnormal inhibitory connections in the brain that can cause seizures and thinking problems in people with dystroglycanopathy.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionOregon Health & Science University NIH-funded
Lab location1 site (Portland, United States)
Project IDNIH-11307643 on NIH RePORTER

What this research studies

Researchers will use mouse models that mimic human dystroglycanopathy and genetic tools to see how dystroglycan helps form and maintain inhibitory synapses in the brain. They will test whether restoring dystroglycan function or related pathways can fix synapse structure and activity. The team will also look for a specific time window when such fixes are most effective. Findings aim to explain why people with dystroglycanopathy develop seizures and cognitive difficulties and to guide future therapies.

Who could benefit from this research

Good fit: People with genetically confirmed dystroglycanopathy or families affected by these forms of congenital muscular dystrophy would be most relevant for future participation, sample donation, or clinical follow-up.

Not a fit: People whose symptoms are caused by conditions unrelated to dystroglycan mutations are unlikely to benefit directly from this work.

Why it matters

Potential benefit: If successful, this work could point to specific targets and timing for treatments to reduce seizures and cognitive problems in people with dystroglycanopathy.

How similar studies have performed: Previous mouse studies have clarified how dystroglycan affects brain development, but strategies to rescue synapse dysfunction and translate them to human therapies remain largely unproven.

Where this research is happening

Portland, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.