How community, caregiving, and policy shape life for people with dementia

Administrative Resource Core

NIH-funded research Icahn School of Medicine at Mount Sinai · NIH-11265777

This project looks at how social connections, health care settings, and policies affect people living with dementia and their caregivers.

Quick facts

Grant typeP01 program project
Study typeNIH-funded research
Funding institutionIcahn School of Medicine at Mount Sinai NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11265777 on NIH RePORTER

What this research studies

From my point of view, researchers will combine large population data, medical records, caregiver reports, and policy databases to see how factors like loneliness, home health ownership, and rural versus urban environments change care and outcomes for people with dementia. They will examine how the organization of health services and payment rules influence hospice and home-based care experiences near the end of life. The Administrative Resource Core coordinates the different studies, supports data sharing, and helps link community, clinical, and policy information. Results will come from connecting records over time and comparing communities to find patterns that matter to patients and families.

Who could benefit from this research

Good fit: People living with dementia and their family or unpaid caregivers, especially those receiving home health, hospice, or other community-based services, would be the primary candidates to be involved or to benefit.

Not a fit: People without dementia or those whose care is confined to short-term inpatient stays and not community-based services may not see direct benefits from this project.

Why it matters

Potential benefit: If successful, this work could point to changes in how care is organized and paid for that improve quality of life and end-of-life experiences for people with dementia and reduce caregiver strain.

How similar studies have performed: Previous population-level studies have linked social and care-setting factors to dementia outcomes, but combining community, health-system, and policy analyses in a coordinated program is relatively novel.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.