How changes in the PUM1 gene lead to two different brain disorders

Deciphering the Role of the Pumilio1 in Two Distinct Neurological Diseases

NIH-funded research Columbia University Health Sciences · NIH-11310799

This project connects specific PUM1 gene changes to either adult-onset balance problems or a severe developmental brain disorder to guide future care for people with ataxia or developmental delays.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionColumbia University Health Sciences NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11310799 on NIH RePORTER

What this research studies

Researchers at Columbia compare different PUM1 mutations found in people with experiments in cells and mouse models to understand why some mutations cause mild, late-onset ataxia while others cause a severe developmental syndrome. They measure PUM1 and ATXN1 protein levels and study how PUM1 binds the 3' untranslated region of target genes to control their production. The team uses mouse genetic crosses that mimic human mutations and collects genetic and clinical information from patients with PUM1 variants to link specific changes to symptoms. Results are intended to improve diagnosis, genetic counseling, and point toward targets for future treatments.

Who could benefit from this research

Good fit: Ideal candidates include people (or families) with known PUM1 gene variants, individuals with unexplained adult-onset ataxia, or those with early developmental delay who are willing to provide genetic and clinical information.

Not a fit: People whose symptoms are caused by other non-PUM1 genetic mutations or non-genetic causes of ataxia or developmental delay are unlikely to benefit directly from this project.

Why it matters

Potential benefit: If successful, this work could improve diagnosis and prognostic information for people with PUM1-related conditions and identify molecular targets for future therapies.

How similar studies have performed: Previous work from this team and others has already shown in mice and in several human cases that PUM1 loss alters ATXN1 levels and can cause ataxia-like symptoms, so this grant builds on those earlier findings.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Attention deficit hyperactivity disorder
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.