How C9orf72 RNA repeats make toxic proteins in ALS and FTD

Deciphering the structural basis of repeat-associated non-AUG (RAN) translation in Amyotrophic Lateral Sclerosis and Frontotemporal Dementia

NIH-funded research University of Michigan at Ann Arbor · NIH-11194424

This research looks for how a repeated RNA sequence in the C9orf72 gene creates toxic proteins that can harm people with ALS or FTD.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Michigan at Ann Arbor NIH-funded
Lab location1 site (Ann Arbor, United States)
Project IDNIH-11194424 on NIH RePORTER

What this research studies

Researchers will use high-resolution cryo-electron microscopy along with lab-based biochemical and genetic tests to see how the repeated GGGGCC RNA sequence interacts with the cell’s protein-making machinery (the ribosome). They will map how translation starts without a normal start signal to produce dipeptide repeat (DPR) proteins that build up in affected brains. The team will also search for neuronal proteins that transiently bind the ribosome and promote this abnormal translation. Combining structural images with experiments should reveal the precise molecular steps that lead to toxic protein production.

Who could benefit from this research

Good fit: The most relevant people would be individuals with ALS or FTD who carry the C9orf72 hexanucleotide repeat expansion, or family members interested in research participation.

Not a fit: People with ALS or FTD caused by other genes or without the C9orf72 repeat expansion are unlikely to see direct benefits from this project in the short term.

Why it matters

Potential benefit: If successful, this work could reveal targets to block toxic protein production and guide new treatments for people with C9orf72-linked ALS or FTD.

How similar studies have performed: Prior studies have shown that C9orf72 repeats produce toxic DPR proteins and harm neurons, but the detailed structural mechanism of how RAN translation starts is largely untested and this cryo-EM approach is novel.

Where this research is happening

Ann Arbor, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.