How a tail piece of a kidney protein may affect polycystic kidney disease

Polycystin-1 C terminal tail cleavage: Mechanisms and meaning

NIH-funded research Yale University · NIH-11249675

Researchers are looking at whether the end piece of the polycystin-1 protein can slow or stop cyst growth in people with autosomal dominant polycystic kidney disease.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionYale University NIH-funded
Lab location1 site (New Haven, United States)
Project IDNIH-11249675 on NIH RePORTER

What this research studies

This project examines how the C-terminal tail of the polycystin-1 (PC1) protein is cut and where the pieces go inside cells, using lab-grown cells and mouse models that mimic human ADPKD. Scientists will focus on a fragment corresponding to the last 200 amino acids of PC1 (P200) that has been linked to reduced cyst growth in mice. The work will track P200’s movement to parts of the cell like mitochondria and the nucleus and test how those movements change cell behavior and cyst formation. Findings are intended to explain the mechanism so future therapies could target the same process.

Who could benefit from this research

Good fit: Adults with autosomal dominant polycystic kidney disease, especially those with PKD1-related disease or who are interested in participating in future translational studies or tissue donation, would be most relevant.

Not a fit: People without ADPKD or those already with end-stage kidney failure unlikely to receive direct benefit from this preclinical lab-focused work in the near term.

Why it matters

Potential benefit: If successful, this could point to new ways to slow cyst growth and preserve kidney function in people with ADPKD.

How similar studies have performed: Prior preclinical work in mouse models showed that expressing the PC1 C-terminal fragment (P200) can suppress cysts, but the exact mechanisms remain unclear and are the focus here.

Where this research is happening

New Haven, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Adult Polycystic Kidney DiseaseAutosomal Dominant Polycystic Kidney Disease
Last reviewed 2026-06-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.