Hidden 'poison' gene segments that affect epilepsy and brain development

Poison exons in epilepsy and neurodevelopment

NIH-funded research Northwestern University · NIH-11095901

This project aims to understand how tiny gene segments called poison exons change brain development and lead to genetic epilepsy so antisense medicines can be used more effectively for patients.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionNorthwestern University NIH-funded
Lab location1 site (Chicago, United States)
Project IDNIH-11095901 on NIH RePORTER

What this research studies

From the patient's perspective, researchers will use cells made from patient samples and lab-grown brain cells to see when and where poison exons are mistakenly included in gene messages. They will read full-length RNA from single cells and measure proteins to map which poison exons are used during human brain development. The team will test how antisense oligonucleotide (ASO) approaches can correct harmful splicing in patient-derived models. Machine learning will tie genetic variants to splicing changes to help predict which patients carry treatable exon mistakes.

Who could benefit from this research

Good fit: Ideal candidates are people with genetic epilepsies or other neurodevelopmental disorders, especially those with suspected splice-region variants or who can provide samples for lab modeling.

Not a fit: Patients whose epilepsy is not caused by genetic or splicing defects, or who cannot provide samples, may not directly benefit from this work.

Why it matters

Potential benefit: If successful, this work could uncover new targets for antisense therapies and help match patients with genetic epilepsy to more precise treatments.

How similar studies have performed: Antisense oligonucleotide treatments targeting exon mis-splicing have already entered clinical trials for some rare epilepsies, but a full map and predictive tools for poison exons are still new.

Where this research is happening

Chicago, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.