Hidden DNA switches that control fetal hemoglobin levels

The dissection of non-canonical cis-regulatory elements downstream of beta-globin locus in the fetal hemoglobin gene regulation

NIH-funded research University of Texas Hlth Sci Ctr Houston · NIH-11189754

This project uses gene-editing tools to find DNA switches near the beta-globin region that might raise fetal hemoglobin and help people with beta-thalassemia or sickle cell disease.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Texas Hlth Sci Ctr Houston NIH-funded
Lab location1 site (Houston, United States)
Project IDNIH-11189754 on NIH RePORTER

What this research studies

Researchers will use CRISPR gene editing and 3D genome mapping to delete or invert specific DNA binding sites around the beta-globin locus and observe effects on fetal hemoglobin production. They will study human-derived blood cells and cellular models to map extended regulatory regions (d-TAD and u-TAD) that sit downstream and upstream of the beta-globin cluster. The team will measure fetal hemoglobin levels after targeted edits and identify non-canonical regulatory elements that act as enhancers, repressors, or insulators. The findings aim to reveal new targets for future gene-editing therapies for hemoglobin disorders.

Who could benefit from this research

Good fit: Adults with beta-thalassemia or sickle cell disease who are willing to donate blood or tissue samples or be considered for future gene-editing approaches.

Not a fit: People without beta-globin disorders, children, or those unwilling to provide samples are unlikely to directly benefit from this basic research.

Why it matters

Potential benefit: Could identify new gene-editing targets to boost fetal hemoglobin and thereby reduce symptoms of beta-thalassemia and sickle cell disease.

How similar studies have performed: Prior work editing BCL11A enhancers and some regulatory boundaries has successfully raised fetal hemoglobin in lab studies and early clinical trials, while this project explores less-studied downstream regulatory elements.

Where this research is happening

Houston, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.