Helping young breast cancer survivors understand genetic testing and share family risk information
Decision Support for Multigene Panel Testing and Family Risk Communication among Racially/Ethnically Diverse Young Breast Cancer Survivors
['FUNDING_CAREER'] · FLORIDA ATLANTIC UNIVERSITY · NIH-11123258
This project helps young breast cancer survivors from diverse backgrounds understand their genetic test results for breast and ovarian cancer risk and how to talk about it with their families.
Quick facts
| Phase | ['FUNDING_CAREER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | FLORIDA ATLANTIC UNIVERSITY (nih funded) |
| Locations | 1 site (BOCA RATON, UNITED STATES) |
| Trial ID | NIH-11123258 on ClinicalTrials.gov |
What this research studies
This project aims to understand why some young breast cancer survivors, especially those from diverse racial and ethnic backgrounds, may not complete genetic testing for hereditary breast and ovarian cancer. Researchers will gather information from 300 survivors to identify factors influencing their decisions about testing, risk-reducing behaviors, and family communication. Additionally, 40 survivors will participate in in-depth interviews to explore their knowledge, attitudes, and beliefs about genetic testing. The insights gained will help create better support tools for these survivors to make informed health choices.
Who could benefit from this research
Good fit: Ideal candidates are young breast cancer survivors, diagnosed at age 50 or younger, especially those from diverse racial and ethnic backgrounds, who are considering or have undergone multigene panel testing.
Not a fit: Patients who are not young breast cancer survivors or who are not interested in genetic testing for hereditary cancer risk may not directly benefit from this specific project.
Why it matters
Potential benefit: If successful, this work could lead to better tools and support for young breast cancer survivors to understand their genetic risks and share this important health information with their families, potentially reducing health disparities.
How similar studies have performed: While genetic testing is established, this project focuses on understanding and improving decision support and communication specifically for diverse young breast cancer survivors, an area where disparities persist.
Where this research is happening
BOCA RATON, UNITED STATES
- FLORIDA ATLANTIC UNIVERSITY — BOCA RATON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: JONES, TARSHA — FLORIDA ATLANTIC UNIVERSITY
- Study coordinator: JONES, TARSHA
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.