Helping young breast cancer survivors understand genetic testing and share family risk information
Official title: Decision Support for Multigene Panel Testing and Family Risk Communication among Racially/Ethnically Diverse Young Breast Cancer Survivors
Funded at Florida Atlantic University · NIH-11123258 · Data updated 2026-11-12
This project helps young breast cancer survivors from diverse backgrounds understand their genetic test results for breast and ovarian cancer risk and how to talk about it with their families.
Quick facts
| Grant type | Career grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Florida Atlantic University NIH-funded |
| Lab location | 1 site (Boca Raton, United States) |
| Project start | July 1, 2021 |
| Project end | June 30, 2027 |
| Funding year | 2025 |
| Award (this year) | $154,505 |
| NIH project number | 5K01CA241393-05 |
| Project ID | NIH-11123258 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are young breast cancer survivors, diagnosed at age 50 or younger, especially those from diverse racial and ethnic backgrounds, who are considering or have undergone multigene panel testing.
✕Less likely to help
Patients who are not young breast cancer survivors or who are not interested in genetic testing for hereditary cancer risk may not directly benefit from this specific project.
What this research studies
This project aims to understand why some young breast cancer survivors, especially those from diverse racial and ethnic backgrounds, may not complete genetic testing for hereditary breast and ovarian cancer. Researchers will gather information from 300 survivors to identify factors influencing their decisions about testing, risk-reducing behaviors, and family communication. Additionally, 40 survivors will participate in in-depth interviews to explore their knowledge, attitudes, and beliefs about genetic testing. The insights gained will help create better support tools for these survivors to make informed health choices.
Why it matters
Potential benefit: If successful, this work could lead to better tools and support for young breast cancer survivors to understand their genetic risks and share this important health information with their families, potentially reducing health disparities.
How similar studies have gone: While genetic testing is established, this project focuses on understanding and improving decision support and communication specifically for diverse young breast cancer survivors, an area where disparities persist.
Where this research is happening
-
Florida Atlantic University
Boca Raton, United States Active
Researchers
- Principal investigator: Jones, Tarsha — Florida Atlantic University
- Study coordinator: Jones, Tarsha
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.