Helping teens with sickle cell disease manage their health
A socio-ecological approach for improving self-management in adolescents with SCD
['FUNDING_R01'] · CINCINNATI CHILDRENS HOSP MED CTR · NIH-11105862
This project is testing a new program called SCThrive, which combines group sessions and a mobile app, to help teenagers with sickle cell disease better manage their health.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CINCINNATI CHILDRENS HOSP MED CTR (nih funded) |
| Locations | 1 site (CINCINNATI, UNITED STATES) |
| Trial ID | NIH-11105862 on ClinicalTrials.gov |
What this research studies
Sickle cell disease can cause serious health problems for teenagers, including organ damage and chronic pain, and they often face challenges in getting the care they need. Taking an active role in managing their own health is very important for these young people to stay healthy and avoid complications. Our team has created a new program called SCThrive, which includes guided group sessions with a therapist and a helpful mobile app. This program is designed to give teens the knowledge, skills, and confidence to manage their sickle cell disease more effectively.
Who could benefit from this research
Good fit: Ideal candidates are adolescents aged 12-20 years old who have sickle cell disease and are looking for new ways to manage their condition.
Not a fit: Patients who are not adolescents or do not have sickle cell disease would not be eligible for this specific program.
Why it matters
Potential benefit: If successful, this program could help adolescents with sickle cell disease improve their self-management, potentially leading to fewer complications and better overall health.
How similar studies have performed: Pilot work for SCThrive has already shown promising results, with participants improving their health management skills and behaviors.
Where this research is happening
CINCINNATI, UNITED STATES
- CINCINNATI CHILDRENS HOSP MED CTR — CINCINNATI, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: CROSBY, LORI E — CINCINNATI CHILDRENS HOSP MED CTR
- Study coordinator: CROSBY, LORI E
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.