Helping teens make informed choices about genomic research results
Engaging adolescents in decisions about return of genomic research results
This study is all about helping teenagers and young adults, ages 13 to 21, understand how they decide whether to receive their genetic test results, so they can feel more comfortable and informed about what those results mean for them and their families.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Cincinnati Childrens Hosp Med Ctr NIH-funded |
| Lab location | 1 site (Cincinnati, United States) |
| Project ID | NIH-10653889 on NIH RePORTER |
What this research studies
This research focuses on understanding how adolescents aged 13-21 make decisions regarding the return of genomic research results. By using focus groups and electronic decision tools, the study aims to refine the processes that help young people and their parents understand the implications of genomic information. Participants will engage in discussions about the perceived value, risks, and benefits of receiving their genomic results, and their choices will be documented and analyzed. The study also includes interviews to explore the factors influencing their decisions and the stability of those choices over time.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents aged 13-21 and their parents, particularly those from diverse and medically underserved communities.
Not a fit: Patients outside the age range of 13-21 or those not interested in genomic research results may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower adolescents to make informed decisions about their genomic health information, enhancing their understanding and management of personal health risks.
How similar studies have performed: Previous research has shown promise in using decision-making tools for genomic information, indicating that this approach could be effective in engaging adolescents.
Where this research is happening
Cincinnati, United States
- Cincinnati Childrens Hosp Med Ctr — Cincinnati, United States (Active)
Researchers
- Principal investigator: Myers, Melanie F — Cincinnati Childrens Hosp Med Ctr
- Study coordinator: Myers, Melanie F
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.