Helping pregnant patients navigate prenatal genetic testing options
Official title: Supporting pregnant patients as they face a changing landscape of prenatal genetic tests and post-diagnosis options
Funded at Cleveland Clinic Lerner Com-Cwru · NIH-11185736 · Data updated 2026-11-12
This study is all about helping pregnant people understand and navigate genetic tests, so they can make informed choices about their health and their baby's health, especially if they find out about any genetic conditions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Cleveland Clinic Lerner Com-Cwru NIH-funded |
| Lab location | 1 site (Cleveland, United States) |
| Project start | September 18, 2024 |
| Project end | August 31, 2025 |
| Funding year | 2024 |
| Award (this year) | $831,046 |
| NIH project number | 1R56HG014415-01A1 |
| Project ID | NIH-11185736 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are pregnant individuals who are considering or have been offered prenatal genetic screening and diagnostic tests.
✕Less likely to help
Patients who are not currently pregnant or those who do not have access to prenatal genetic testing may not benefit from this research.
What this research studies
This research focuses on supporting pregnant patients as they encounter the complexities of prenatal genetic screening and diagnostic tests. It aims to provide patients with the necessary information and resources to make informed decisions regarding these tests and the options available if a genetic condition is diagnosed. The project will explore strategies to enhance individualized decision-making, particularly for diverse populations facing these challenges. By identifying effective approaches, the research seeks to empower patients in their reproductive healthcare choices.
Why it matters
Potential benefit: If successful, this research could lead to improved decision-making support for pregnant patients, ultimately enhancing fetal and neonatal outcomes.
How similar studies have gone: Previous research has shown success in developing decision-making support tools for patients in similar healthcare contexts, indicating potential for this approach.
Where this research is happening
-
Cleveland Clinic Lerner Com-Cwru
Cleveland, United States Active
Researchers
- Principal investigator: Farrell, Ruth — Cleveland Clinic Lerner Com-Cwru
- Study coordinator: Farrell, Ruth
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.