Helping people with inherited cancer risk follow prevention and screening plans
Applying Population Management Best Practices to Preventive Genomic Medicine
This project uses web-based resources and personalized outreach with a care manager to help people who have inherited cancer risk complete recommended screening and prevention steps.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Washington NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project ID | NIH-11367921 on NIH RePORTER |
What this research studies
You would be offered one of two ways to stay connected after genomic testing: easy-to-use web resources that link to trusted education, or personalized outreach from a dedicated care manager who helps you plan and track next steps. The team will update both approaches and then measure whether patients get timely follow-up, screenings, and preventive care without adding work for your regular doctor. They will track outcomes across participating health systems using electronic health records and direct outreach to see which approach works best to keep patients on track. The goal is better long-term follow-up for people with inherited cancer risk so recommendations are actually carried out.
Who could benefit from this research
Good fit: People identified by genomic testing as carrying inherited cancer-risk variants who receive care within the participating health systems are ideal candidates.
Not a fit: People without inherited cancer-risk variants, those not receiving care at participating health systems, or individuals who decline web or outreach services may not benefit from this project.
Why it matters
Potential benefit: If successful, this could help people with inherited cancer risk more reliably complete recommended screenings and preventive care, lowering their cancer risk and improving outcomes.
How similar studies have performed: Care management and outreach have improved adherence in other preventive and chronic care settings, but applying these population-management approaches specifically to genomic-based hereditary cancer risk is relatively new.
Where this research is happening
Seattle, United States
- University of Washington — Seattle, United States (Active)
Researchers
- Principal investigator: Knerr, Sarah — University of Washington
- Study coordinator: Knerr, Sarah
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.