Helping patients with Parkinson's and their caregivers make end-of-life decisions
Preparing Patient-Caregiver Dyads with Parkinson's Disease for End-of-Life Decision Making
This study is all about helping people with Parkinson's disease and their caregivers have better conversations and make more informed choices about end-of-life care, by training healthcare professionals to support them in planning for the future.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Purdue University NIH-funded |
| Lab location | 1 site (West Lafayette, United States) |
| Project ID | NIH-10650777 on NIH RePORTER |
What this research studies
This research focuses on developing and testing a new approach to advance care planning for patients with Parkinson's disease and their caregivers. It aims to improve communication and decision-making about end-of-life care through tailored interventions. The project involves training healthcare professionals to facilitate these discussions and analyze the effectiveness of the interventions over time. By engaging both patients and caregivers, the research seeks to address their unique needs and preferences in planning for future healthcare decisions.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with Parkinson's disease and their family caregivers.
Not a fit: Patients who do not have Parkinson's disease or those who are not involved in caregiving may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower patients and their caregivers to make informed and personalized end-of-life care decisions.
How similar studies have performed: Previous research has shown that dyadic approaches to advance care planning can improve communication and decision-making in similar patient populations.
Where this research is happening
West Lafayette, United States
- Purdue University — West Lafayette, United States (Active)
Researchers
- Principal investigator: Xu, Jiayun — Purdue University
- Study coordinator: Xu, Jiayun
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.