Helping patients with lung disease make informed care decisions
Improving shared decision making in lung disease
This project helps patients with severe lung disease and their families make important healthcare choices that match their personal values and goals.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pennsylvania NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project ID | NIH-11164507 on NIH RePORTER |
What this research studies
Patients facing serious illnesses often have inaccurate ideas about their future health, which can make it difficult to choose treatments that truly reflect what they want. This is especially true for people with Chronic Obstructive Pulmonary Disease (COPD), an incurable lung condition, who often don't use advance care planning or palliative care. This project aims to understand why patients with COPD might have overly optimistic expectations and how that affects their quality of life. Researchers will work with 420 patients with severe COPD and their family caregivers to develop new ways to help them make decisions that align with their personal values. The goal is to improve their well-being by ensuring their care choices truly reflect what matters most to them.
Who could benefit from this research
Good fit: Ideal candidates are patients with severe Chronic Obstructive Pulmonary Disease (COPD) and their family caregivers.
Not a fit: Patients without severe COPD or those not involved in making complex care decisions for serious illness may not directly benefit from this specific approach.
Why it matters
Potential benefit: If successful, this work could help patients with severe COPD and their caregivers make healthcare decisions that better align with their personal values, leading to improved well-being and quality of life.
How similar studies have performed: This work proposes a novel application of behavioral theories and methodologies to address goal-discordant care in COPD, building on preliminary work showing a link between optimistic expectations and quality of life.
Where this research is happening
Philadelphia, United States
- University of Pennsylvania — Philadelphia, United States (Active)
Researchers
- Principal investigator: Hart, Joanna Lee — University of Pennsylvania
- Study coordinator: Hart, Joanna Lee
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.