Helping parents make decisions about hypospadias care
Official title: A type I hybrid effectiveness-implementation study of a parent-centered tool to promote shared decision-making in hypospadias care
Funded at Univ of North Carolina Chapel Hill · NIH-11175523 · Data updated 2026-11-12
This project is testing a new online tool to help parents of boys with hypospadias feel more confident and informed when deciding on treatment options.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Univ of North Carolina Chapel Hill NIH-funded |
| Lab location | 1 site (Chapel Hill, United States) |
| Project start | August 22, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2025 |
| Award (this year) | $670,065 |
| NIH project number | 5R01DK140178-02 |
| Project ID | NIH-11175523 on NIH RePORTER |
Who could benefit from this research
✓Could help
Parents of newborn boys diagnosed with hypospadias who are facing treatment decisions would be ideal candidates.
✕Less likely to help
Parents who have already made treatment decisions for their child's hypospadias may not directly benefit from this tool.
What this research studies
Hypospadias is a common birth defect where the urethra opens on the underside of the penis, and parents often struggle with treatment decisions, sometimes leading to regret. Our team developed an online tool called the Hypospadias Hub to provide clear information and support shared decision-making. We are now conducting a larger comparison to see if using this tool helps parents feel better about their choices and understand hypospadias care more deeply. We will also learn what makes it easier or harder for clinics to use this tool in the future.
Why it matters
Potential benefit: If successful, this tool could help parents of boys with hypospadias make more informed treatment decisions and experience less regret.
How similar studies have gone: This specific tool has been developed and pilot-tested by the research team, showing promising initial results.
Where this research is happening
-
Univ of North Carolina Chapel Hill
Chapel Hill, United States Active
Researchers
- Principal investigator: Schilling, Samantha S — Univ of North Carolina Chapel Hill
- Study coordinator: Schilling, Samantha S
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Hypospadias decision support tool to help families make choices
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.