Helping Latinx families advocate for adult services for youth with autism
Adapting an advocacy services intervention for Latinx families of transition-aged youth with autism spectrum disorder
This study is working on a program to help Latinx parents of kids with autism learn how to advocate for better services as their children transition from school to adulthood, making sure the program fits their needs.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Vanderbilt University NIH-funded |
| Lab location | 1 site (Nashville, UNITED STATES) |
| Project ID | NIH-11020043 on NIH RePORTER |
What this research studies
This research focuses on adapting an advocacy program designed to help parents of youth with autism spectrum disorder (ASD) transition from school to adult services. The ASSIST program teaches parents how to effectively advocate for necessary services, addressing the unique barriers faced by Latinx families. By modifying the curriculum based on feedback from Latinx parents, the researchers aim to improve access to post-secondary education, health, and employment services for these underserved families. The project will involve pre-testing the adapted curriculum to ensure it meets the specific needs of Latinx families.
Who could benefit from this research
Good fit: Ideal candidates for this research are Latinx families with transition-aged youth diagnosed with autism spectrum disorder.
Not a fit: Patients who do not identify as Latinx or do not have youth with autism spectrum disorder may not receive benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower Latinx families to better navigate and access essential adult services for their youth with autism.
How similar studies have performed: Previous research has shown success with similar advocacy programs, indicating a promising approach to improving service access for marginalized populations.
Where this research is happening
Nashville, UNITED STATES
- Vanderbilt University — Nashville, United States (Active)
Researchers
- Principal investigator: Burke, Meghan — Vanderbilt University
- Study coordinator: Burke, Meghan
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.