Helping families make decisions about home ventilation for children with complex medical needs
Official title: HomeVENT (Home Values and Experiences Navigation Track)
Funded at Johns Hopkins University · NIH-10919805 · Data updated 2026-11-12
This study is all about helping families with children who have complex medical needs and might need breathing support at home, by providing a friendly online tool that helps them share experiences and make treatment choices that fit their values and home life.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Johns Hopkins University NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project start | September 4, 2023 |
| Project end | August 31, 2028 |
| Funding year | 2024 |
| Award (this year) | $663,635 |
| NIH project number | 5R01HD110414-02 |
| Project ID | NIH-10919805 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children under 11 years old with complex medical conditions requiring consideration of home ventilation options.
✕Less likely to help
Patients who do not have respiratory insufficiency or do not require home ventilation may not benefit from this research.
What this research studies
This research focuses on supporting families of children with complex medical conditions who may require home ventilation. It aims to provide a structured decision-making process that incorporates the family's values and home context into the choice of treatment. The approach includes a web-based tool that facilitates family-to-family information sharing and a team deliberation tool for healthcare providers to collaboratively assess treatment options. By addressing the emotional and practical challenges families face, this research seeks to improve the decision-making experience for both families and clinicians.
Why it matters
Potential benefit: If successful, this research could empower families to make informed decisions about home ventilation, potentially improving their quality of life and healthcare outcomes.
How similar studies have gone: Other research has shown success in using structured decision-making tools in healthcare, indicating that this approach has the potential for positive outcomes.
Where this research is happening
-
Johns Hopkins University
Baltimore, United States Active
Researchers
- Principal investigator: Boss, Renee — Johns Hopkins University
- Study coordinator: Boss, Renee
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.