Helping families and communities join and stay in the All of Us program
All of Us Research Program Engagement and Retention Innovators
['FUNDING_OTHER'] · RESEARCH TRIANGLE INSTITUTE · NIH-11378237
This project builds digital tools and community programs to make it easier for children, families, tribal groups, and their providers to join and remain active in the All of Us research program.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | RESEARCH TRIANGLE INSTITUTE (nih funded) |
| Locations | 1 site (RESEARCH TRIANGLE PARK, UNITED STATES) |
| Trial ID | NIH-11378237 on ClinicalTrials.gov |
What this research studies
The team works directly with community members, pediatric groups, tribal partners, and health care providers to co-design engagement approaches using human-centered design. They create and test digital decision-support tools, web-based games, continuing education for providers, and outreach materials to improve recruitment and retention. The project runs trainings like the All of Us Researcher Academy and supports participants serving on program workgroups so patients help shape the program. Efforts include pediatric protocol support and an Indigenous Researcher Working Group to tailor materials for children and tribal communities.
Who could benefit from this research
Good fit: Ideal participants are U.S.-based children and their families, tribal and community members, and their health care providers who want to engage with the All of Us program.
Not a fit: People who live outside the United States, those who do not want to share health data, or those uninterested in research participation are unlikely to benefit from this project.
Why it matters
Potential benefit: If successful, this could increase enrollment and fair representation of children, families, and tribal communities in research and make study results more useful and accessible to patients.
How similar studies have performed: Large cohort programs have used community engagement to boost enrollment and diversity, though combining human-centered digital tools, pediatric outreach, and tribal advisory groups at this scale is relatively new.
Where this research is happening
RESEARCH TRIANGLE PARK, UNITED STATES
- RESEARCH TRIANGLE INSTITUTE — RESEARCH TRIANGLE PARK, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: LEWIS, MEGAN A — RESEARCH TRIANGLE INSTITUTE
- Study coordinator: LEWIS, MEGAN A
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.