Helping children learn about their HIV status
Pediatric HIV Disclosure Intervention and Benefits Study-(PH-DIBS)
This study is testing a new program called 'Sankofa' to help caregivers in Ghana talk to children aged 7-18 about their HIV diagnosis, making it easier for families to share important health information and improve their overall well-being.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Boston University Medical Campus NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-10879109 on NIH RePORTER |
What this research studies
This research investigates a new intervention called 'Sankofa' designed to help caregivers disclose HIV diagnoses to children aged 7-18 in Ghana. The program aims to improve health outcomes by addressing the barriers that prevent caregivers from sharing this critical information with their children. By using a structured approach based on established health behavior models, the intervention is integrated into routine clinical care. The effectiveness of this intervention will be evaluated through a randomized trial comparing outcomes between children who receive the intervention and those who do not.
Who could benefit from this research
Good fit: Ideal candidates for this research are children aged 7-18 living with HIV who have not yet been informed of their diagnosis, along with their caregivers.
Not a fit: Patients who are already aware of their HIV status or those outside the age range of 7-18 may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower children with knowledge about their HIV status, leading to better health management and adherence to treatment.
How similar studies have performed: Previous research has shown promising results with similar disclosure interventions, indicating potential for success in this novel approach.
Where this research is happening
Boston, United States
- Boston University Medical Campus — Boston, United States (Active)
Researchers
- Principal investigator: Paintsil, Elijah — Boston University Medical Campus
- Study coordinator: Paintsil, Elijah
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.