Helping caregivers disclose HIV exposure to their children
Disclosure Intervention to Support Caregivers (DISC)
This study is all about helping caregivers talk to their kids about HIV exposure in a supportive way, especially for children who are exposed but not infected, so families can communicate better and feel more connected.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Massachusetts General Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-11067363 on NIH RePORTER |
What this research studies
This research focuses on developing effective tools and strategies to assist caregivers in disclosing HIV exposure status to their children and adolescents. It aims to address the challenges faced by caregivers, particularly in the context of children who are HIV-exposed but uninfected (HEU). By understanding the implications of maternal antiretroviral drug exposure and the impact of HIV on family dynamics, the study seeks to improve communication and support for these families. The research will involve collecting detailed data on health outcomes and caregiver experiences to inform best practices for disclosure.
Who could benefit from this research
Good fit: Ideal candidates for this research include caregivers of children and adolescents who are HIV-exposed but uninfected.
Not a fit: Patients who are not affected by HIV exposure or do not have caregivers involved in their health management may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower caregivers to communicate effectively about HIV exposure, leading to better health outcomes and support for children and adolescents.
How similar studies have performed: Previous research has shown that effective communication strategies can improve health outcomes in similar populations, suggesting potential for success in this approach.
Where this research is happening
Boston, United States
- Massachusetts General Hospital — Boston, United States (Active)
Researchers
- Principal investigator: Powis, Kathleen — Massachusetts General Hospital
- Study coordinator: Powis, Kathleen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.