Helping adolescents and young adults make informed health decisions
Official title: Adolescents and Young Adults: Dilemmas, Education, and Choices Impacting Decisions (AYAs DECIDe) Study
Funded at University of Utah · NIH-10985653 · Data updated 2026-11-12
This study is all about helping teens and young adults with differences in sex development feel better and make informed choices about their health by creating helpful tools and resources for them and their doctors to use together.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Utah NIH-funded |
| Lab location | 1 site (Salt Lake City, United States) |
| Project start | September 18, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2024 |
| Award (this year) | $167,455 |
| NIH project number | 1K23HD113825-01A1 |
| Project ID | NIH-10985653 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are adolescents and young adults diagnosed with differences of sex development (DSD).
✕Less likely to help
Patients who do not have differences of sex development or are outside the adolescent and young adult age range may not benefit from this research.
What this research studies
This research focuses on improving the health and psychosocial outcomes for adolescents and young adults with differences of sex development (DSD). It aims to create decision aids that facilitate shared decision-making between patients and healthcare providers. The project will involve training in sexual health education and the development of educational materials to support surgical decision-making. By engaging patients in their healthcare choices, the research seeks to empower them and enhance their overall well-being.
Why it matters
Potential benefit: If successful, this research could lead to better health outcomes and increased patient satisfaction for adolescents and young adults facing complex medical decisions.
How similar studies have gone: Previous research has shown success in using shared decision-making tools in healthcare, indicating that this approach has potential benefits.
Where this research is happening
-
University of Utah
Salt Lake City, United States Active
Researchers
- Principal investigator: Suorsa-Johnson, Kristina Irene — University of Utah
- Study coordinator: Suorsa-Johnson, Kristina Irene
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.