HeartShare patient data and outreach center
Administrative Core
This program builds data tools and outreach to enroll people with heart failure, gather their medical records and mobile health data, and support research to improve heart-failure care.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Northwestern University NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project ID | NIH-11121871 on NIH RePORTER |
What this research studies
If you join, the HeartShare Data Translation Center helps collect your electronic health records from participating clinics and coordinates the process so your information is consistent with other participants. The program supports enrollment and retention with a call center and a mobile platform (Eureka) so you can share wearable and other mobile health data. It standardizes lab measurements across sites, creates core labs for consistent testing, and links cardiology clinicians with data scientists through training programs. The goal is to make large, high-quality datasets that researchers can use to learn more about heart failure and how to tailor care.
Who could benefit from this research
Good fit: Adults living with heart failure who receive care at one of the HeartShare clinical centers (and some matched control participants) are the most likely candidates to join.
Not a fit: People without heart disease or those who cannot access or visit participating clinical centers are unlikely to be able to join or benefit directly from this program.
Why it matters
Potential benefit: If successful, this work could speed research that leads to more personalized care and better treatments for people with heart failure.
How similar studies have performed: Large registries and EHR-linked heart-failure studies have previously advanced care, and combining standardized site data with mobile health and AI in this program is a newer, promising approach.
Where this research is happening
Chicago, United States
- Northwestern University — Chicago, United States (Active)
Researchers
- Principal investigator: Shah, Sanjiv J — Northwestern University
- Study coordinator: Shah, Sanjiv J
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.