NIH-funded research P01 program project

Health effects of healthcare paperwork on people with Alzheimer's and related dementias

Official title: Project 4 - The Health Impact of Administrative Burdens for People with ADRD

Funded at National Bureau of Economic Research · NIH-11420410 · Data updated 2026-11-12

This grant explores how administrative hassles in healthcare affect people with ADRD and their caregivers.

Quick facts

Grant typeP01 program project
Study typeNIH-funded research
Funding institutionNational Bureau of Economic Research
NIH-funded
Lab location1 site (Cambridge, United States)
Project startFebruary 1, 1997
Project endAugust 31, 2029
Funding year2026
Award (this year)$402,664
NIH project number5P01AG005842-37
Project IDNIH-11420410 on NIH RePORTER

Who could benefit from this research

Could help

Individuals living with ADRD and their informal caregivers who interact with the healthcare system in the U.S.

Less likely to help

Patients who have minimal interaction with healthcare administration may see limited direct benefit.

What this research studies

People with Alzheimer’s and related dementias often face difficult daily tasks, and extra administrative barriers can add strain to care. The project looks at how billing, prior authorizations, and complex forms impact access to care and overall well‑being. It emphasizes real-world experiences of patients and their caregivers within the U.S. healthcare system and aims to identify ways to reduce unnecessary burdens. Findings may inform policy and practice to improve care quality and access for ADRD patients.

Why it matters

Potential benefit: If successful, the project could streamline administrative processes to improve care access and reduce stress for ADRD patients and their families.

How similar studies have gone: Prior work shows administrative burdens can affect care access; this study builds on those insights in ADRD populations.

Where this research is happening

  • National Bureau of Economic Research
    Cambridge, United States
    Active

Researchers

  • Principal investigator: Layton, Timothy — National Bureau of Economic Research
  • Study coordinator: Layton, Timothy

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.