Health and emotional well-being of young children with cleft palate
Health and Psychosocial Outcomes in Young Children with Cleft Palate
Following young children with cleft palate and their families to learn how the condition and its treatments affect their health, behavior, and everyday life.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Research Inst Nationwide Children's Hosp NIH-funded |
| Lab location | 1 site (Columbus, United States) |
| Project ID | NIH-11144950 on NIH RePORTER |
What this research studies
You and your child would be invited to share medical history, demographic information, and caregiver experiences while clinicians collect standardized measures of health, speech, and psychosocial functioning. The team will work with cleft care centers to gather this information over time so they can see which children face bigger challenges. Researchers will look at medical factors (like cleft type and timing of diagnosis), family stress, and access to services to understand who needs extra support. The goal is to use these findings to guide when and what kinds of mental health and social services families might be offered.
Who could benefit from this research
Good fit: Ideal candidates are infants and young children with cleft palate (with or without cleft lip) and their caregivers who receive care at participating cleft centers.
Not a fit: People without a cleft diagnosis or children outside the enrolled age range are unlikely to be eligible or benefit directly from participation.
Why it matters
Potential benefit: If successful, the work could help target mental health and supportive services to children with cleft palate and their families earlier and more effectively.
How similar studies have performed: Some smaller or single-center studies suggest psychosocial support helps, but a large coordinated multisite effort like this is relatively new.
Where this research is happening
Columbus, United States
- Research Inst Nationwide Children's Hosp — Columbus, United States (Active)
Researchers
- Principal investigator: Crerand, Canice Ellen — Research Inst Nationwide Children's Hosp
- Study coordinator: Crerand, Canice Ellen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.