GOAL: How community and social factors affect people with lupus in Georgia
DP22-002 Georgians Organized Against Lupus: The GOAL of Better Understanding Social Determinants of Health in Lupus
This project looks at how neighborhood, social, and access-to-care factors influence health for people with systemic or cutaneous lupus around Atlanta.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project ID | NIH-11129600 on NIH RePORTER |
What this research studies
You would join a long-running group of over 1,100 people with confirmed systemic lupus or primary cutaneous lupus who are followed over time. The team collects personal health information plus neighborhood and geographic data to understand how social factors shape disease course and access to care. The work combines surveys, medical record data, and location-based measures to spot care gaps and patterns that matter to patients. Results aim to point to better services, outreach, and policies for people living with lupus in the community.
Who could benefit from this research
Good fit: Ideal candidates are adults with a confirmed diagnosis of systemic lupus erythematosus (SLE) or primary cutaneous lupus living in the Atlanta/Georgia area who can join or are already part of the GOAL cohort.
Not a fit: People without lupus, those whose diagnoses are not confirmed, or individuals living far outside the Georgia recruitment area are unlikely to benefit directly from participation.
Why it matters
Potential benefit: If successful, this work could reveal social and geographic barriers to care and guide programs or policies that improve health and reduce disparities for people with lupus.
How similar studies have performed: This builds on existing population-based lupus registries and cohort studies that have successfully uncovered disparities and natural history patterns, so the approach is established rather than wholly untested.
Where this research is happening
Atlanta, United States
- Emory University — Atlanta, United States (Active)
Researchers
- Principal investigator: Lim, Sung Sam — Emory University
- Study coordinator: Lim, Sung Sam
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.