Ghana Sickle Cell Consortium (SPARCo)
Ghana-SPARCO: Ghana Sickle Pan-African Research Consortium
['FUNDING_U01'] · KWAME NKRUMAH UNIVERSITY/SCIENCE/TECH · NIH-11088155
Creating a national patient registry and care network in Ghana to improve understanding and care for people of all ages with sickle cell disease.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | KWAME NKRUMAH UNIVERSITY/SCIENCE/TECH (nih funded) |
| Locations | 1 site (KUMASI, GHANA) |
| Trial ID | NIH-11088155 on ClinicalTrials.gov |
What this research studies
I would be asked to share my medical history and clinical data so doctors can better track sickle cell disease across Ghana. The project enrolls patients into a registry, links participating hospitals and clinics, and supports screening and prevention efforts like newborn testing and patient education. It also trains local healthcare staff and builds systems to follow patients over time to learn which care practices reduce complications. The goal is to use this information to improve treatments and health policies for people with sickle cell disease.
Who could benefit from this research
Good fit: People of any age in Ghana with sickle cell disease, and their caregivers, are the ideal candidates to join the registry and related programs.
Not a fit: People without sickle cell disease or those who live outside the participating regions in Ghana are unlikely to benefit directly from this project.
Why it matters
Potential benefit: If successful, this work could lead to earlier diagnosis, better follow-up, and policies that lower illness and deaths from sickle cell disease in Ghana.
How similar studies have performed: Previous SPARCo activities and other regional registries have helped track patients and inform care improvements, and this project expands that coordinated effort within Ghana.
Where this research is happening
KUMASI, GHANA
- KWAME NKRUMAH UNIVERSITY/SCIENCE/TECH — KUMASI, GHANA (ACTIVE)
Researchers
- Principal investigator: SARFO, FRED STEPHEN — KWAME NKRUMAH UNIVERSITY/SCIENCE/TECH
- Study coordinator: SARFO, FRED STEPHEN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.