Genetics resource for frontotemporal dementia

Genetics Core

NIH-funded research Mayo Clinic Rochester · NIH-11198460

This program looks for and maps genetic changes linked to frontotemporal dementia using DNA from people in the ALLFTD network.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionMayo Clinic Rochester NIH-funded
Lab location1 site (Rochester, United States)
Project IDNIH-11198460 on NIH RePORTER

What this research studies

From a patient's perspective, the Genetics Core collects and analyzes DNA from thousands of ALLFTD participants to find genetic causes of frontotemporal lobar degeneration (FTLD). They use broad genetic testing and deep profiling to identify known and new mutations and to group people with similar genetic signatures. The core shares analyzed genetic data with ALLFTD projects and other researchers to improve links between genes, brain imaging, and biomarkers. This work helps explain unexplained cases and guides better matching of patients to future trials and treatments.

Who could benefit from this research

Good fit: Ideal candidates are people diagnosed with frontotemporal dementia or related syndromes and family members who can provide DNA samples for genetic study.

Not a fit: People without FTLD-type dementia or those seeking immediate clinical treatment (rather than genetic characterization) are unlikely to get direct benefit from this genetics resource.

Why it matters

Potential benefit: If successful, this could help identify genetic causes of someone's dementia and make it easier to match patients to the most appropriate clinical trials or future gene-targeted therapies.

How similar studies have performed: Genetics consortia have already found major FTLD genes and this core has previously generated genetic data from thousands of participants, so the approach builds on proven methods.

Where this research is happening

Rochester, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer disease dementiaAlzheimer syndromeAlzheimer's Disease
Last reviewed 2026-06-09 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.